Facts on PTLS by: Julie Smith-Centeno (Founder and CEO)
Julie has been studying children and adults with Potocki-Lupski Syndrome for 28 years now. Her passion is in observing and compiling common characteristics and behaviors of the children as they progress through life. then present the information to families, doctors, scientists and educators to help educate and raise awareness. She has made it her mission to make sure reaches all parts of the globe educating all so that no child, or family, is left to wonder. She will make sure they have knowledge and tools to help the child reach their greatest potential in life.