The Great Imitators

tate t sm for cover

Are you a parent wondering what the best way to teach your child is? Are you a teacher who has the pleasure of having one of our children in your class? Our children are wonderful at mimicking those around them. They will begin by sitting or standing off to the side observing. Once they can pick out who the active children are, and who the calm children are, they will begin to engage. They will gravitate to the once who are calmer, as they are not sure how to protect themselves when another child begins to engage in an aggressive manner.

They will observe the good, the bad and the ugly. If they are in a room with “typical” children, you can expect them to improve in learning, speaking, and increasing in their activity. They will require a firm routine and predictability in their surroundings. A parent will always know what happened at school, because the child will line up their dolls or toys and begin to teach them, almost word for word, what the teacher said and what the children around them were saying.

Teach through actions. Learn through observations.


Oh the Nerves!!!

PTLS FACT for Today:
Nerves, Anxiety, Oh My!
Anxiety and nerves can get the best of our children and adults. Once it sets in their mind, it is very difficult for them to stop it. Anxiety can present itself in many ways; crying, increased stimming, and vomiting. Once they vomit, they are able to regain control, release the anxiety and refocus. Observing the cues, and looking for the trigger (which can be seen as something small or insignificant to the parent,family, friends or teacher) can help this situation. Often times, once the trigger is planted in their mind, it is not able to be easily removed or redirected until they can follow through with the needed release, so they can process this in their way, not so much in the way many feel they should. It is the way their beautiful minds work, and all they ask is to be validated, help with calming the situation and respected. What can you do? Watch for the facial cues they will give. Look for the triggers and prepare them to reduce the anxiety, or simply avoid them. Help them learn to avoid their triggers, or learn coping skills to help them through.~Julie Smith-Centeno 2010


The Love for the Outdoors

Studies have shown that our children thrive on an enriched environment. The fact is, our children with PTLS love the outdoors! Hiking, walking, bike riding, swimming, playing soccer, jumping on trampolines, riding horses, snow ski, riding scooters, or just going for a stroll, our children tend to not only build muscle strength, but build confidence, increase in learning, thrive and develop in so many ways. Time in the outdoors is good for everyone! robcriding for PTLS ResearchTateThomas

Facts on PTLS

Facts on PTLS by: Julie Smith-Centeno (Founder and CEO)

Julie has been studying children and adults with Potocki-Lupski Syndrome for 28 years now. Her passion is in observing and compiling common characteristics and behaviors of the children as they progress through life. then present the information to families, doctors, scientists and educators to help educate and raise awareness.  She has made it her mission to make sure reaches all parts of the globe educating all so that no child, or family, is left to wonder. She will make sure they have knowledge and tools to help the child reach their greatest potential in life.

Fact handout mpn 2015